My newest addiction… for some reason my body is asking for this meal alllll the time.  Sandra explained it with my body doing top sport right now and I love that. From the start of this journey I didn’t want to turn it into a battle. This brain tumor is not my enemy . It’s […]

This day started amazing. I woke up feeling peaceful. Normal even. No pain in legs and/or head (that’s been a while) and I even felt strong with more energy I’ve felt in weeks. So I’m happy happy happy. I’m so grateful for all the love and support. My focus is on what makes me smile, […]

Another blood test and they took twice…now waiting for the results. Twice as good would be nice. Fingers crossed. Outcome: Blood is a bit better but not good enough to start another round of chemo. I feel trust and peace. I will get what I need xxx

This week is all about good food and good company. Yesterday we had a great dinner with a great group of people. Awesome. Tonight Peter is having dinner out with ex co-workers (no partners for this one) so Sandra came over…she loves to cook and I love to eat…perfect combination, perfect evening. And the fun […]

Peter did some redecoration and now I have my own relax corner. I’m very tired and my legs hurt. But the flowers and cards give me energy, so it feels good to sit here. Blood showed my body isn’t restoring what the chemo is taking, but that’s normal and expected. We keep our hopes up […]

This was such a good surprise… our friends Ellen and Steve paid us a surprise visit and it was sooooooo good to see them. This was awesome. Really happy day. xxx Ellen and I know each other for years, but they live on Mallorca, so we don’t see each other that much, so this was […]

Blood test was okay, so celebrating in Scheveningen. Peter is getting us some fresh fish. This new round of chemo is nasty. Very tired and affecting my muscle tissue. Walking and getting up is a major challenge. We arranged a wheelchair so we can still go out. We’re dealing with it xxx

This journey brings me lots of curves. Like Sir Tom Jones. Never felt a connection with him and suddenly he was in my head. During the radiation. Singing to me. Remember that story? Well Ellen remembers, because she sent this new cd of our guy. Sooooo happy with that!!!! Awesome surprise. Thanks girlfriend xxxx Just […]

This round of chemo is really taking me hard. Head aches, feeling sick and very tired. One of the meds also triggees depression, so we decided we needed to go out. We did and it was a good choice. Still tired but at least now we’re smiling again….

Today a new round of chemo has started, so I keep myself very relaxed. Fingers crossed my body will be able to deal with this treatment for the next six months. I’ll keep you informed as best as possible, but when I’m silent, you know why xxx