In the waiting room for a new MRI-scan. The day started freaky. My right arm started shaking uncontrollably and my body felt very weird. I really thought this is it. Called Peter and he immediatelly recognised what was wrong…an epileptic seizure. Pfffffff how scary. But the timing was good, because monday we will hear what […]

“The path isn’t a straight line; it’s a spiral. You continually come back to things you thought you understood & see deeper truths.” – Unknown Again perfect timing. This is exactly the process as I experience it.

Peter is at the city hall right now, to finish the paperwork for a wheelchair. It’s still a strange development, I never enviosned all those devices in my future, but now I’m thankful that I am more mobile because of them. My life has been turned upside down. It can’t be a coincidence my Wordsoap […]

Holiday is over and so is the peace and quiet of my beloved Drenthe. Back to the real world.

Celebrating my mother’s BDay was .- as always – an event to remember…and we will. Another day to be grateful for…and we are. Life is good.

Back home!!! Drenthe was great, not in the least because Paul and Sandra rented a holiday let close by and their visit was great. The dogs hadn’t seen each other for a while, so it was a bliss watching them together again. Tomorrow is my mother’s birthday and we will be dining out, so now I […]

For better and for worse… 14 years ago I married this beautiful man and still grateful I did. Still so in love and in awe with him.

A couple of years ago I started making Selfbuilders. Cards with a self-made image and one-liners. All these years I have used them in different ways, but they mean even more to me during this brain tumour journey. The text is really sinking in. Showing more layers. I had no idea, but this path lets […]

Just had news from the doctors’ meeting and it’s exactly what we hoped for: a break. No chemo and no blood tests for the next couple of weeks!!! It doesn’t mean they or we give up or that there’s no hope. My body just need a break to recover from the heavy treatmeants I’ve had. […]

Blood much better. Numbers are up, anyway. Not enough for a new round of chemo though. Doctors will be discussing what the next step will be coming monday. But chances are that I need to have another MRI scan first, to see if there are any changes. Last week, the platelets were around 60, now […]